A Matter of Taste

July 20, 2013

Ben and Jerry's peanut butter cup ice cream. It was all I could taste while I was on chemo. I couldn't drink tap or spring water; it had a metallic taste. I preferred purified water. I drank gallons of it and still couldn't quench my thirst or get that awful chemo taste out if my mouth. The ice cream cooled the sores in my mouth and throat and gave me the calories I needed, I suppose. 

When mom came to visit she made Sinigang full of spinach. She made Ox tail soup: the marrow was to help increase my blood count so I wouldn't end up in the hospital again. But after she left, it was always back to the ice cream. It was the easiest thing to get, and I didn't have the energy to make a meal. 

On this day I'm at yogurt land with my favorite girls. I put little peanut butter cups on top of my pistachio, coconut, mango and chocolate yogurt piles. I savored each flavor. I enjoyed the mixtures of sweet, tangy and chocolatey goodness. I crunch the peanut butter cups and make them blend with the other flavors already in my mouth. And I taste them all. Enjoying each spoonful and flavor as they make my senses come alive. In this moment, I am happy.

Today this exercise in mindfulness has reminded me of how important it is to enjoy the many flavors of life, and to remember to appreciate them. And Today,  I am grateful, I got my "taste" back.

Hair Today, Gone Yesterday

7-18-13

Brushing my hair. I love the way it feels when the bristles touch my scalp. Running my fingers through the strands, feeling like silk threads. I'm grateful for my hair. How it feels on the back of my neck and on my shoulders.

I remember how it felt to lose it. How cold my head was and how ugly I felt. I remember the tears and how I avoided the mirror. I couldn't touch it. My fingers were numb from the chemo. Each day I lost more and more until it was all gone. I tried ice packs and put on a cap to try to stop it. But lost it all. Who was that person? 

One night I caught a glimpse of myself in the bathroom mirror and scared myself: bald head, sunken eyes, dark circles. Was it a zombie? Was it an intruder? No...it was me. I cried and cried. I lost myself. Who is that person?

But today,  I have hair. Beautiful soft hair that still makes me cry when I brush it. But only because  I remember that girl that lost her hair. She was so sad. Now when i look close I can still see her; there she is, looking right back at me. She is in my eyes. But now she's not afraid. Because she is me, now. 

Today, I am grateful for my hair.

A New Normal

A New Normal

It’s been 4 years since I was diagnosed with breast cancer.  I was a single mother at the time, struggling with bills and supporting my son as he started college.  I was working three jobs and dealing with some other family issues.  It wasn’t the right time for me to get cancer.  But then again, there’s never a good time to get cancer.

After my surgery, chemo, radiation, I was placed on Tamoxifen every day and Zoladex injections every 3 months.  I lost my hair, eyebrows, eyelashes and my self-esteem was at its lowest.  I had a negative self-image; I battled insomnia, bone pain and depression for years following my diagnosis and treatments.  Looking back I can remember those challenges, the memory of that time is with me every day.  Once you get cancer, you never stop thinking about it.  It has become a driving force in my recovery and my transition into a new normal.

When I finished chemo and radiation, I was excited to get back to my old life. Well, what I considered normal, at the time.  But the truth is, you can’t.  What was  “normal” before, no longer exists.  It’s locked away in the past, along with the cancer. All the things you use to do before cancer shut you down, is gone.  You have to make better choices now and find a way to experience the life you have, at this very moment; and not reach back to try and start where you left off.  This is a new time for you.  One where you will learn more about yourself than you ever knew existed.  Because now you know how it felt to lose yourself and become a prisoner to the cancer.  You will soon learn to value your second chance at life.  Though you may feel like the same person on the inside.  You are not. You have to accept that in order to find the “you” you are, now, after the cancer. This is called, the new normal.

The new normal is what you decide it to be.  Starting to eat healthier, take vitamins, exercise and practice gratitude are some ways to begin your transition.  Your body has been poisoned, your muscles have begun to atrophy; it’s up to you to take back control of your own body.  Remember it takes 28 days for something to become a habit.  Why not make it one that will  improve your mind, body and soul?  Work on yourself from the inside out.  If you truly want to take your life back and start enjoying your second chance, you have to start with your body and mind. Remember, you are not the same person.  You are a new person.  Believe that, and you are ready to join me on my journey to find the new normal.

March 23, 2009: I Want My LIfe Back

I Want My LIfe Back

Current mood:restless

I don't remember the last time I got full nights sleep.  I'm on so much med's right now I don't know if I'm dreaming.  Seems like the only way I can get to sleep is if I pass out from drinking, that can't be healthy.  So I'll keep taking the pills.

The hot flashes, the nights I wakes up soaked in sweat like I had just taken a shower.  The leg pain in my bones!!  The pain is the worse.  Please make it stop!  I want to rest!!

The doctor says it's a side effect from the hormone blockers I have to take to prevent the cancer from coming back. It's called Tamoxifen.  I need to take it every day for 5 years!!!!   

I also get an implant every 30 days to shut my ovaries down.  That poison is called Zoladex and the fricken needle looks like an ice pick!  I take these for 2 years!!!!  That gives me cramps and migraines. 

 Last night I slept a couple hours.  But I'm sure my mind was still awake because I didn't feel rested at all.  I don't feel tired, nor do I feel awake.  What the hell?

I wish I was a bird so I could just go anywhere I wanted.  Away from this place.  Away and out of my body.  I'm so tired of all this crap.  Tired of looking at myself in the mirror.  Seeing that ugly face looking back at me!  Tired of this mess of a house.  I'm tired of being hottt!!!  I just want my life back.  I want to feel normal again.  I want to do what I used to do, and just not worry about shit.

Yeah, I know I'm sounding low.  I guess occassional depression is a side effect too.  I'll be okay....I got pill for that too.  I just want to be back to when I didn't have to take a whole bunch of med's and didn't have to worry if the cancer was coming back.

Ughh.  I just want to fly away...I want my life back

December 6, 2008: Crossing the Finish Line

End of Treatments

Current mood:accomplished

Crossing the Finish Line

One of my Doctors

This past Thursday, I finished my last day of treatment. The night before I kept checking my calendar making sure I got the date right.   I didn't want it to be like the time I thought it was Friday at work, only to find out at the end of the day it was only Thursday. (It was a rough week.) 

In this case, it's been a rough 6 months. But there I was, ready to cross the finish line.

Radiation was time consuming, taking up 3 hours of my day, every Monday through Friday for the past few months. Actually, it was 35 treatments plus 6 radiation boosts at the end. The treatment itself was only a few minutes long. It was the prep and the drive that took the longest. 

The ride, however, was made bearable only because I shared it with 14 other cancer patients. We all knew about surgery, chemo and rads. We shared the same concerns about our treatments and we all had radiation as the last part to cross on our way back to being healthy.

My Radiology Team

Saying goodbye to my radiation therapists was bittersweet. I was glad it was all over, but yet I wasn't going to see these people again, and this made me sad. They helped cure me. 

Leaving my support group behind was also hard for me. As soon as I came out of the doctor's office I was met by a round of applause from the waiting room patients. It really was like crossing that finish line. I could hear, "You did it! You did!" Most of them, I didn't even know. But all of them knew how tough this journey was.   I did it.

Me and Deb, this journey brought us closer as friends

 

Well, after treatment I went to meet my dear old friends to watch the Chargers beat the Raiders. I hadn't been to the old spot since I started chemo and it was very nice seeing everybody. It was like coming home and celebrating a victory. Actually…it was coming home….and it is a huge victory. My doctor actually showed up and a few drinks with us.

These friends were by my side from the beginning

Tonight will be a huge celebration for me.   I will be celebrating my birthday (belated) and my end of treatments.    This is really going to be a great night for me, I am so thankful for my friends and grateful for being done with everything.  I am thankful that I am here to share my story of survival.

Cheers to me

November 9, 2008: Bottom of the Well

Bottom of the Well


It's dark and damp
I'm sitting at the very bottom covered in mud
and wet with tears
My voice is weak
my hands shake
I reach up to grab the wall
I can't see
I can't feel
walls are slick there is nothing to grab
I cry...help
weak, soft but with determination...HELP
Nothing
sounds hollow
I sob, I cry out...HELP
No one hears, no one knows I'm here
No one knows I'm here
but I'm here
Why won't someone look for me and pull me out of here?
I can't do it alone....help
I can't, I can't
I cry, I'm alone
No one hears me
Please....please someone look for me
I don't want to die at the bottom of this well
alone
No one knows I'm here
I'm here

November 4, 2008: He Won't Even Look At Me

He won’t even look at me......

Current mood:sad

My mom and dad were with me in June when I had the consultation with my surgeon.  Being in the medical field, it was comforting to have them there asking the questions I wouldn't have thought of.  Although most of my dad's questions were about quadrants and other medicalese fancy-talk, he did impress my doctor.  She had to look through the file to answer most of his questions.  Then he asked about my other breast.  My doctor explained that since the mammo was ok, no other tests were ordered.  My dad ordered them.

I went to have an ultrasound where they found two more questionable masses.  I had two more biopsies and had to wait for the results.  My surgery was scheduled for that Tuesday and I didn't want to have to do it, only to find out I had to go back and have surgery on the other breast. I seriously wanted to postpone it til I got the results.  Well, luckily the tests came back negative and surgery went on as planned.

My dad is a dedicated doctor and a very hard worker.  I understood when he wasn't able to be there for my surgery.  My mom and kids were along with Gary, Susan and Darci, that's what mattered. I was not alone.  I understood when he was too busy to talk to me on the phone about my treatment options.  I understood why he couldn't call me when I was in the hospital because he was tired from working all day and playing with the baby.  But I don't understand why he won't look at me.....

The last time I stayed with my parents down south, I noticed how uncomfortable it was for my dad to look at me.  When I hugged him he did the "pat on the back" thing.  When I came down for breakfast I sat at the table and he got up and put his dish in the sink, claiming he was done.  When I went in the living room to watch the Charger game with him, he went upstairs.  When I went upstairs to sit with him, he went downstairs to the kitchen.  Why?

Today I called to tell him I was going to visit soon and he quickly handed the phone to my mom.  I asked my mom if I was ugly, because dad won't look at me, she just said...."You know how he is...." 

I don't know what to do.  He won't even look at me........

November 2, 2008: What Do I do Now?

So....what now?

I finished chemo.  Yay!  Now I'm two weeks into radiation with only 4 weeks to go and......then what?

Right now I travel 45 minutes away every day for about 5 minutes of radiation. (That's every day- 5 days a week for six weeks total!)   It makes me tired, but not like chemo tired.  Chemo knocked my ass out.  Rads makes me feel sleepy tired and lazy, that I can deal with.  Still have to deal with the frequent bone pain, hot flashes, dizziness and nausea.  But what can I do?  Somedays I can barely make it out of bed.  Missed a lot of work.  Hope I won't get fired!

Friend on the Rad Squad

Radiation Room

For the past 5 months I've been scheduling my life around the cancer. I put my life on hold because I wasn't well enough to do the things I usually did.  It changed everything I was used to.  I can't work my three jobs and I miss all my friends so much!

Cancer changed the way I felt about life.  It took away the parts of me that made me feel feminine.  My long hair is gone, part of my breast.....and my perception of myself has changed too.  When I look at myself I can see the toll this illness has taken on my poor little body.  Then I think....fuck you cancer!  Look what you did!  Now I gotta get myself back, take it back from that hell.

Rad Squad Buddy

When I'm done with this shit I'll know it took me 6 months to fight it.  Six months of my life that I can never get back!  Six months!!!  My life will never be the same.  But....one thing's for sure, I'll be alive to enjoy what life has in store for me next.  I feel like since I beat this I might be kinda invincible....you know like how the guys in the elevator felt after taking a potion? (Big Trouble in Little China)

Well, whatever....I still got a ways to go.  But the weird thing about it is when this is over, when there are no treatments to go to, no appointments......what do I do?  Actually, I probably mean....what do I do first?  When every hour of my life for the past 6 months was about cancer and the treatments and the suffering...

What do I do first?

September 29, 2008: Last Round

Last Chemo Round!

Current mood:fermented

That last round of chemo laid me out.  Seriously I was in sooo much pain, my hips, my back, my legs....I had to roll out of bed, fall to the ground and frickin crawl to the bathroom!  No shit, that is the truth.  I got sick and threw up that very night and every night after.  I even threw up the pills that were supposed to keep me from throwing up!  I couldn't take my pain pills because they were upsetting my tummy and making me....throw up!  What a mess.  

Then I got a rash from the top of my bald ass coconut filipino head down to the soles of my monkey feet....owwy, itchy!  Bitch ass chemo!  It took me 2 weeks to rebound.

I started feeling better after Bob Marley visited me in a dream...or was it?  Anyways, I wasn't nauseous when I woke up so I was able to take my pills and get out of bed.... then the Chargers beat the Jets...and I felt like getting out of bed and going to work.  

I even got the energy to celebrate my friend Gary's birthday.  

Funny....everyone always say that it's too quiet when I'm not around.  Hmmm....interesting.  Well I didn't drink of course, I really didn't feel like it.  It was funny watching JR, he makes me laugh when he drinks.  They all do.  Hey wait...what?  

Anyways....now that I'm feeling better, I gotta get all pyched up to do this shit all over again.  The difference is.....this chemo cocktail...will be my last!

How do I feel....scared, nervous, hesitant....because I know it's gonna hurt like hell. I know I'm gonna get sick...I know my bones will hurt.  


 Each treatment seemed to get progressively worse and took me longer to recouperate so I'm anticipating this one's gonna be like the grand finale on the fourth of July.  


I can't even say tomorrow's the last day cuz I still gotta go in for the three consecutive days of shots in my tummy til it's all over......oh....dread...I'm eriously shaking right now thinking about it.   Whatever, I'm tough right.  Can tough girls cry though?  Cuz  I sooo want to be tough, but finding it hard to right now.

September 20, 2008: Not a Champ

Not A Champ


I'm  not as strong as I thought.  It's hard for me to sleep because of the bone pain, hot flashes and the nausea in the morning.  I'm missing work.  I can't eat.  I can't move.  The new girl at work is annoying and makes me dizzy with all her talking and I can't focus.


Please make this stop.  I'm tired.

September 10, 2008: New Wig

Back to Work with a Smile

My cousin Grace told me that she was able to go to work the whole time she was on chemo.  I'm a single mom, my son is in college and I really didn't have a choice but to try to work through all of this.  I was working as a bartender on the weekends.  Everyone was very helpful and whenever I needed a break, there was always someone there to help.  But now school is starting and I needed to be there for the kids every day.

First of all, the PTA helped me buy an awesome wig.  I couldn't believe how expensive they were!  Mine cost $170.00!  It was the best!  No one at work really noticed.  They called it my new "sassy" hairstyle.  I'm going to do this.  I'll put on my smile and make this happen.  No one will even know!!

September 7, 2008: Second Round of Chemo

I hate you cancer

Current mood:depressed

The last round of chemo kicked my ass.  And it was only my second one!  Damn.  I thought I was a warrior.  I thought I was gonna stand up to this thing, put up my dukes and beat the shit out of it.  Ha!  Guess I'm not as tough as I thought.

First of all, I had to go back to the doctor the day after chemo and for two days after that, to get shots to boost my white blood cells.  So, that along with the chemo, took it's toll on this little body of mine.  The doctor keeps checking my kidneys and is concerned about the creatinine level being so high.  I keep getting bone pains, rashes, insomnia, fatigue, dizzy spells, loss of appetite, my nails are turning purple......oh yeah...loss of my beautiful hair....waaahh... Damn you!  I hate you cancer!

I just want to feel normal again.  I want to feel strong.  But now I worry what's gonna happen next?  My next round is tomorrow!!!!  And I just started feeling better yesterday!  Damn.  I know this is the hard part and I'm gonna be a survivor, but.....this is really hard. Now I got to look forward to 5 hours of poison in my veins..... I would never, ever want any of my friends or family to have to experience this chemo shit.  It's really, really hard.  I'm so gonna do massive shots when I'm done with this drama.

I hate you cancer!  You suck!